Update April

It has been a while since I have updated the blog. I have had a sick mom month. I guess it has been my turn.

Jack has been doing pretty well. The medication for the GI issues seems to be helping some. He has been struggling with all the same issues, but they seem a bit better. He is snotty and has a cold this week. It is not traveling quickly to pneumonia like normal. I think this is because Jack at this time is on a very strong antibiotic till the end of May. He had a rough night last night. He had a tetany episode. This is very painful. They did give me new medication to try during these episodes. I used it for the first time. It is hard to tell if it helped much or not at this point.

We are currently dealing with finding a school with a nurse for next year. The leap program Jack is currently in is closing. It is unbelievable that the state is allowing these programs to close. Jack gets all his services at school and it has been a good experience for him. We will have to drive at least 15 minutes one way to get him into a school with a nurse. We are trying hard to figure this all out. Believe it or not we don't have much time and they don't have many openings for the fall.

Please keep Jack in your prayers. We are asking people pray for the current school situation for the fall. We are praying it all works out OK.