Jack had a few doctor appointments recently. They all went fairly well. We saw the specialist here yesterday. It gets a bit frustrating. There is no cure or prognosis for Jack. That means that we watch all the major areas with issues in his body and do what we can. They do not really fully get what is going on with his weight. They are sending him to a pain center to start to manage his pain. The doctors feel since this is something he will have to deal with throughout his life that it would be a good thing to start it now.
We go to Cleveland in April. We are still waiting to hear something about aqua therapy. He is currently on a waiting list and has been. That is very frustrating as well.
Jack has had a cold. His asthma has been acting up. Thank God, he seems to be getting better. His leg pain has been on the rise. He has been dealing with it pretty well.
He is focused on Christmas at this time. He has had a lot of questions. He has been asking a lot about Santa and Jesus. He has also been asking a lot of questions about death and heaven. I think this is a common age for these questions. His brother was around the same age when he asked these same things. He is very excited and counting down the days till Christmas. He is such a joy to be around.
Friday, December 17, 2010
Wednesday, November 24, 2010
Update
Jack is still having a hard time in school. He has been real sick with his disease. It makes the mornings real hard for him. He wakes up a lot at night so having to get up at a certain time in the morning is hard. His stomach issues have still been real bad and that has not helped in the morning either. Once he gets to school he seems to be doing better then he was. He is saying that he likes school most days now. This is a big change because for the first couple of months he was saying he hated school. He still has his days that he hates it but it is getting better.
He is having the hardest time he has ever had dealing with his disease. For the first time in his little life he is seeing how his disease effects his every day life. He is getting irritated. He has had two break downs. He has just cried and yelled saying "I don't want this stupid disease...I don't want it...I don't want it". It has been so hard to keep it together in those times. I tell him that he is strong and that God is using him to be a light to other people. I try to show him the good that can come out of all his pain.
He still is very happy and joking almost all the time. It is only regarding school, pain, medication, and some rough tired mornings that he has had some issues. Jack deals with changing issues every day. He does well dealing with his disease for the most part. He is just getting older and really starting to see for himself the limits on his body. He is seeing how being ill and in pain effect his every day life. He is only six years old and he fights this every day with a smile on his face 90% of the time. It is a life full of pain, illness, and obstacles. He does it with such a great spirit.
Please keep Jack in your prayers. He is still struggling with many issues. He is getting a cold. The cold is kicking up his asthma. He has a couple doctor appointments this month. We are still trying to get some answers regarding his weight gain. We just try and deal with one of his issues at a time. Some days there are so many things that arise it seems overwhelming. Jack keeps moving and smiling so how can I do any different.
He is having the hardest time he has ever had dealing with his disease. For the first time in his little life he is seeing how his disease effects his every day life. He is getting irritated. He has had two break downs. He has just cried and yelled saying "I don't want this stupid disease...I don't want it...I don't want it". It has been so hard to keep it together in those times. I tell him that he is strong and that God is using him to be a light to other people. I try to show him the good that can come out of all his pain.
He still is very happy and joking almost all the time. It is only regarding school, pain, medication, and some rough tired mornings that he has had some issues. Jack deals with changing issues every day. He does well dealing with his disease for the most part. He is just getting older and really starting to see for himself the limits on his body. He is seeing how being ill and in pain effect his every day life. He is only six years old and he fights this every day with a smile on his face 90% of the time. It is a life full of pain, illness, and obstacles. He does it with such a great spirit.
Please keep Jack in your prayers. He is still struggling with many issues. He is getting a cold. The cold is kicking up his asthma. He has a couple doctor appointments this month. We are still trying to get some answers regarding his weight gain. We just try and deal with one of his issues at a time. Some days there are so many things that arise it seems overwhelming. Jack keeps moving and smiling so how can I do any different.
Monday, October 18, 2010
Struggling
Jack is really struggling at this time. His pain, stomach issues, asthma and frustration are really up at this time.
School this year has been really hard. The past two weeks he has cried every day before going to school. He says he hates school. He has the best teachers he has ever had. I have been in constant contact with them. I drive Jack and pick him up from school as he has asked. We have tried to get to the bottom of what has been bothering him. He is not being picked on. Well, he says he is not. When trying to get to the bottom of everything it seems that it is his frustration that is the main problem. He says even on a morning when I start out feeling okay I get really tired early at school. He is getting frustrated if he makes mistakes or messes up. He is noticing that certain tasks are difficult. He got frustrated because he cut the ear off a scarecrow he was cutting. It was no good. He wanted it thrown in the garbage. He saw the mistake as it not being good or like everyone else's. No matter how much we seem to talk to him about being different and that being OK and good, but he still is frustrated. He felt he was tired and was having a hard time so that is why he messed up on the scarecrow. He said to me that when he gets tired he makes mistakes. He said everyday I don't feel good and my stomach hurts. I smell things and have to throw up. He said then my arms and legs hurt. I have tried to explain to him that it is his disease that is causing it. I have tried to explain that being different is OK. I have explained that it is normal to get frustrated with not feeling well. I have told him that he is strong and I am proud of him.
It is still hard to send him off and know he does not want to go. It is so hard because I know his disease is acting up. He has trouble at night, waking up with pain. Even in the evenings or weekends he is having stomach issues. I am aware that those things are real. At the same time if I kept him home every time he did not feel well he would never go to school. It is so hard to send him off and wake him for school when he has been up at night. We take it day by day and that is all we can do. It is frustrating when he is going through a period where everyday is pretty bad. I hate when we go through periods of many issues at once.
He also is upset and noticing his weight. He has asked me several times how to get skinny. We are trying with his food and watching his sugar. It seems like no matter what the weight keeps coming. He is growing as well. He had his MRI. We are now waiting on the results. We are due to go back to Cleveland but I must reschedule the appointment. He sees his specialist here in December.
Keep Jack in your prayers. He is really starting to put together the realization of his issues and illness and how it effects him every day. It is seeming to be a lot on a 6yr old. Every smile on his face I see is a inspiration.
School this year has been really hard. The past two weeks he has cried every day before going to school. He says he hates school. He has the best teachers he has ever had. I have been in constant contact with them. I drive Jack and pick him up from school as he has asked. We have tried to get to the bottom of what has been bothering him. He is not being picked on. Well, he says he is not. When trying to get to the bottom of everything it seems that it is his frustration that is the main problem. He says even on a morning when I start out feeling okay I get really tired early at school. He is getting frustrated if he makes mistakes or messes up. He is noticing that certain tasks are difficult. He got frustrated because he cut the ear off a scarecrow he was cutting. It was no good. He wanted it thrown in the garbage. He saw the mistake as it not being good or like everyone else's. No matter how much we seem to talk to him about being different and that being OK and good, but he still is frustrated. He felt he was tired and was having a hard time so that is why he messed up on the scarecrow. He said to me that when he gets tired he makes mistakes. He said everyday I don't feel good and my stomach hurts. I smell things and have to throw up. He said then my arms and legs hurt. I have tried to explain to him that it is his disease that is causing it. I have tried to explain that being different is OK. I have explained that it is normal to get frustrated with not feeling well. I have told him that he is strong and I am proud of him.
It is still hard to send him off and know he does not want to go. It is so hard because I know his disease is acting up. He has trouble at night, waking up with pain. Even in the evenings or weekends he is having stomach issues. I am aware that those things are real. At the same time if I kept him home every time he did not feel well he would never go to school. It is so hard to send him off and wake him for school when he has been up at night. We take it day by day and that is all we can do. It is frustrating when he is going through a period where everyday is pretty bad. I hate when we go through periods of many issues at once.
He also is upset and noticing his weight. He has asked me several times how to get skinny. We are trying with his food and watching his sugar. It seems like no matter what the weight keeps coming. He is growing as well. He had his MRI. We are now waiting on the results. We are due to go back to Cleveland but I must reschedule the appointment. He sees his specialist here in December.
Keep Jack in your prayers. He is really starting to put together the realization of his issues and illness and how it effects him every day. It is seeming to be a lot on a 6yr old. Every smile on his face I see is a inspiration.
Monday, September 13, 2010
School days and Update
Well Jack started school last week. He is in first grade. The school year got off to a really Rockie start for us. He was suppose to be in a class with an aid. The first day off school I get there to find there was no aid in his class due to cut backs. How is a teacher suppose to take care of 17 other children plus Jack. What does she do when he needs assistant with toileting? What does she do when his stomach issues act up and he vomits? There is a laundry lists of what ifs. It was the first day and her response about a communication book back and forth was very poor. Needless to say I called the chairperson and talked with the principle. Jack has a CONFIRMED diagnosis. He has a disease with no cure or prognosis. He is very vulnerable. He may have a great day but that doesn't mean a great night. He may have a bad morning and that doesn't mean a bad rest of day. It is a daily waver of how he is doing. What of his many muscular areas and pain may act up. One teacher can not monitor this and be on point. It seemed at first because Jack has no learning disabilities that the school was all about education over Jacks safety. They did however by the second day change him to a class with a aid and two teachers. As a parent I am very happy. This team of teachers is appearing at this time to be great. God worked fast and answered this nervous mothers prayers. I am so glad I did not have to call Jacks lawyers or the umdf. I am glad that at this time they seem to be working well with me.
Jack was happy about the change. He however has been having major anxiety about school. I have finally got to the bottom of some of his issues. The School made his bus tag wrong and he new it. That is why he did not want to ride the bus. He has been having major anxiety and his stomach has been bothering him aside from the disease.
Please keep Jack in your prayers. He is just having major issues with school. He is having a hard time and is very frustrated. He also has a lot of appointments coming up. He has a MRI under sedation coming up. That is a big deal with Jack. We appreciate all the prayers we can get.
Jack was happy about the change. He however has been having major anxiety about school. I have finally got to the bottom of some of his issues. The School made his bus tag wrong and he new it. That is why he did not want to ride the bus. He has been having major anxiety and his stomach has been bothering him aside from the disease.
Please keep Jack in your prayers. He is just having major issues with school. He is having a hard time and is very frustrated. He also has a lot of appointments coming up. He has a MRI under sedation coming up. That is a big deal with Jack. We appreciate all the prayers we can get.
Monday, June 14, 2010
Update
Jack has been doing OK lately. He is ending his school year very soon. It was a good year over all for him. He did have a lot to adapt to this year. He also had a lot of frustrations to over come. In Jacks bounce back spirit and style he managed to do it.
We celebrated Jacks sixth birthday last month. He had a big party this year. We rented a bounce house. He got to have some friends and act like everyone else (for the most part) that day. It was great to see him be able to do that.
He tried t-ball this year. It has caused some painful nights but Jack over comes as always. He runs different then the other kids but other then that appears the same. We have lucked out and most of his games the weather has not been too hot. He has only had to wear his cooling vest two times. He hates wearing the vest. He also uses it in school. It comes in handy with the over heating but I do not blame him for hating it. I am looking into trying a different type. I do not know if it will be any better but we will see. This one constricts his movement and appears uncomfortable. It also wets through onto his shirt. I guess it is better then him not being able to try tball or worrying about him over heating in school. I just feel his frustration every time he has to put it on. It is hard to enforce things and battle with him when I would feel the same way. I just always have to remind him the other choice is not participating in an activity or ending up in the hospital. Tball the running is one base and you stop for the most part. If it was more then that he would need a runner at all times. Even the little he does during a game effects him that night (usually). He still wants to play (unless he has to wear the vest). He just wants to have fun and be like everyone else.
With summer coming he has a lot of doctor appointments coming up. The next few months will be full of appointments and tests. We have an appointment with his specialist here coming up. We will be going over the last Cleveland trip. We got the blood test results and some medications were increased. Of course I have a lot of questions. Also all the tests and new things the Dr from Cleveland wants in place have to be ordered by his specialist here. It will be test and appointment city coming up for Jack.
He loves to swim. Memorial day weekend he had the opportunity to swim. We could not get him out of the water. The doctor in Cleveland wants him in a water program. I will talk with the specialist here about getting a script for one. Jack by far seems to do best with water activities. He loves going to grandmas pool. He loves taking a bath. He just loves the water. I am so pleased that he has something fun that is good for him that he seems to handle rather well.
Please keep Jack in your prayers with all his upcoming appointments and tests . His stomach issues seem to be on the rise as well again. We would appreciate prayer for that and his chronic pain as well. We believe in the power of prayer. We have really seen God have his hands upon Jack. We know God has a purpose and plan for Jack in the midst of this disease. He inspires me on a daily bases. I am so very blessed to be his mother.
We celebrated Jacks sixth birthday last month. He had a big party this year. We rented a bounce house. He got to have some friends and act like everyone else (for the most part) that day. It was great to see him be able to do that.
He tried t-ball this year. It has caused some painful nights but Jack over comes as always. He runs different then the other kids but other then that appears the same. We have lucked out and most of his games the weather has not been too hot. He has only had to wear his cooling vest two times. He hates wearing the vest. He also uses it in school. It comes in handy with the over heating but I do not blame him for hating it. I am looking into trying a different type. I do not know if it will be any better but we will see. This one constricts his movement and appears uncomfortable. It also wets through onto his shirt. I guess it is better then him not being able to try tball or worrying about him over heating in school. I just feel his frustration every time he has to put it on. It is hard to enforce things and battle with him when I would feel the same way. I just always have to remind him the other choice is not participating in an activity or ending up in the hospital. Tball the running is one base and you stop for the most part. If it was more then that he would need a runner at all times. Even the little he does during a game effects him that night (usually). He still wants to play (unless he has to wear the vest). He just wants to have fun and be like everyone else.
With summer coming he has a lot of doctor appointments coming up. The next few months will be full of appointments and tests. We have an appointment with his specialist here coming up. We will be going over the last Cleveland trip. We got the blood test results and some medications were increased. Of course I have a lot of questions. Also all the tests and new things the Dr from Cleveland wants in place have to be ordered by his specialist here. It will be test and appointment city coming up for Jack.
He loves to swim. Memorial day weekend he had the opportunity to swim. We could not get him out of the water. The doctor in Cleveland wants him in a water program. I will talk with the specialist here about getting a script for one. Jack by far seems to do best with water activities. He loves going to grandmas pool. He loves taking a bath. He just loves the water. I am so pleased that he has something fun that is good for him that he seems to handle rather well.
Please keep Jack in your prayers with all his upcoming appointments and tests . His stomach issues seem to be on the rise as well again. We would appreciate prayer for that and his chronic pain as well. We believe in the power of prayer. We have really seen God have his hands upon Jack. We know God has a purpose and plan for Jack in the midst of this disease. He inspires me on a daily bases. I am so very blessed to be his mother.
Tuesday, April 27, 2010
Cleveland Update
Jack had an appointment last week in Cleveland. We made a mini vacation of it since it was spring break from school for the boys. It was nice to do that with them. It is hard for Jack, and something he doesn't look forward to when we drive down for the appointment and come back all in the same day.
The appointment itself went ok. His specialist there is concerned about the tremendous (the word he used in his report) weight and height gain Jack has had.
He agrees with the specialist Jack see's in Syracuse that something seems to
not make much sense. Jack is the height of a almost 8 year old and the weight of a 10 year old. He is going to just be turning six at the end of May. Makes even less sense with a child with mito disease. He was failure to strive and low height and weight until age 4. That is more common and typical of a child with mito disease. So the doctor in Cleveland is ordering a MRI with contrast. He wants to check Jacks pituitary in the brain. He said this weight/height thing is probably either a hormonal condition or a dietary calorie issue. That is less likely since we watch Jacks sugar, log his food each day, and keep track of calories.
He also is referring us to Pain management specialist. He thought due to Jack increase in pain this would be good. He will likely through out his whole life have to deal with pain issues. He said going to a pain management specialist now and getting that in place may be good. He also would like to see him do pool therapy. Not due to exercise but due to his extreme low tone. It will build muscle and endurance. Jack will likely always have issues there and regular exercise and training causes pain and overheating. He thinks water things would be the best route. Now to find a
program for Jack. He doesn't want him in swim lessons. He wants him in a swim program. I have no clue if there is something like that around here.
The Dr also sent his muscle out for more testing. They have discovered new tests since our last appointment. They froze Jacks muscle years ago when he had his first muscle biopsy. They keep it and test it as new tests become available. Jack also had a lot of blood work done that day. He checked all the regular stuff they check with Jack and added some new blood tests as well.
They also added some more medications to the daily ones he currently takes. Hoping this will help with the tetany and muscle cramping and pain that Jack deals with. Jacks been experience high bouts of tetany and pain. The worse we have ever dealt with in frequency.
We see the specialist here in June. We have to get the medication, MRI, and pool thing rolling between now and then.
As far as the trip Jack had a nice time. It is so nice to see him enjoy himself. He has struggled greatly the last 6 months with pain. He has dealt with a lot at school. Being picked on and noticing he is different has been hard for him.
It was nice to see him just relax and unwind. He is such a inspiration to me. I am so proud to be his mother.
The appointment itself went ok. His specialist there is concerned about the tremendous (the word he used in his report) weight and height gain Jack has had.
He agrees with the specialist Jack see's in Syracuse that something seems to
not make much sense. Jack is the height of a almost 8 year old and the weight of a 10 year old. He is going to just be turning six at the end of May. Makes even less sense with a child with mito disease. He was failure to strive and low height and weight until age 4. That is more common and typical of a child with mito disease. So the doctor in Cleveland is ordering a MRI with contrast. He wants to check Jacks pituitary in the brain. He said this weight/height thing is probably either a hormonal condition or a dietary calorie issue. That is less likely since we watch Jacks sugar, log his food each day, and keep track of calories.
He also is referring us to Pain management specialist. He thought due to Jack increase in pain this would be good. He will likely through out his whole life have to deal with pain issues. He said going to a pain management specialist now and getting that in place may be good. He also would like to see him do pool therapy. Not due to exercise but due to his extreme low tone. It will build muscle and endurance. Jack will likely always have issues there and regular exercise and training causes pain and overheating. He thinks water things would be the best route. Now to find a
program for Jack. He doesn't want him in swim lessons. He wants him in a swim program. I have no clue if there is something like that around here.
The Dr also sent his muscle out for more testing. They have discovered new tests since our last appointment. They froze Jacks muscle years ago when he had his first muscle biopsy. They keep it and test it as new tests become available. Jack also had a lot of blood work done that day. He checked all the regular stuff they check with Jack and added some new blood tests as well.
They also added some more medications to the daily ones he currently takes. Hoping this will help with the tetany and muscle cramping and pain that Jack deals with. Jacks been experience high bouts of tetany and pain. The worse we have ever dealt with in frequency.
We see the specialist here in June. We have to get the medication, MRI, and pool thing rolling between now and then.
As far as the trip Jack had a nice time. It is so nice to see him enjoy himself. He has struggled greatly the last 6 months with pain. He has dealt with a lot at school. Being picked on and noticing he is different has been hard for him.
It was nice to see him just relax and unwind. He is such a inspiration to me. I am so proud to be his mother.
Wednesday, January 20, 2010
Frustration
I am very frustrated today. I know I can not protect Jack from everything. I know kids will be kids. I still sometimes just want to scream. We live in a world were it seems each generation gets worse then the last. Jack is only in kindergarten. He says to me today "mommy can you help me get skinny"?.....long story short... a girl in his class is calling him fat. Jack is on the heavy side but is not fat. He is currently going through testing to see about this weight and height increase.
Then a kid on the bus calls him snail because he walks slow and funny. I know all kids (even kids with out problems like Jack) get picked on. I think it is so frustrating for me because Jack has enough to deal with on a daily bases as it is. I told him to just tell the kids that they are not being nice. Tell them I am how I am because I have a disease that makes certain things harder for me. I guess I was more frustrated because I am having this conversation and he is in kindergarten. I guess I was expecting more of this stuff in like third or forth grade. Do parents today teach there children anything? Do we take responsibility anymore for our children's actions. Do we realize letting them watch, and hear certain things at the wrong age is wrong. Fine, do not shelter your children, but please age appropriate material. I can fail at this in ways at times myself. I am not pointing fingers but some parents do not care. They produce rude little off spring and just do not act as if they care. I guess as a christian all you can do is lead by example. I know as a christian I fail many times. Give it to God and pray . Pray for all the children. The rude, bossy, inconsiderate and love them all.
What are are schools today doing? What are they doing about all the children being bullied or harassed. You have to dress a certain way. You have to act a certain way. If you do not then you are an out cast. Then children do not want to go to school. Furthermore, AGAIN what are parents doing at home?
Jack has to be different every day of his life. It is a struggle just to get out of bed with out pain. To eat his breakfast with out being sick and vomiting. He has to start his day off with 13 medications. Trying to chew the pills down that are not liquid because he cant swallow pills. He has to try to dress himself. Depending on the day he may or may not be able. Then he has to rush at everyone else speed. He has to get woken up out of bed to go to school on time. He has to get up and start the rat race no matter if he has had 2 hours of sleep or 9. He has to watch his brother and best friend get on a bus to go to the same school, yet he cant ride on it. He gets driven to school. He then walks in a special entrance to try to preserve his energy for the day. He has to sit in a special chair instead of on the floor when the other kids are sitting on the floor. He has to be pulled out of the class through out the day to go to therapy. He has to ride around in a stroller type chair so he can make it physically through the day. He has to eat at a special table at lunch. He has to eat with kids with issues instead of his class because of his choking issues. He has to go to the nurse to get his asthma treatments. He has to carry around a water bottle so he doesn't over heat. He has to come home after the other kids are home. He has to arrive on the "little" bus. He then has to take a nap or have quite activity and not play because he is exhausted from his day. He has to quickly have another round of medication. Then before bed he will chew up some more nasty pills so he can hopefully get a good nights rest. That is what a typical day for Jack is like. I left out a lot. I left out the pain. I left out the tetany . I left out the being singled out. I left out the frustration. I left out the hurt. I left out the throwing up. I left out the many doctor appointments and tests. I left out his feelings. His feelings that get effected every day. Most importantly I left out that this kid barely ever complains. I left out that this kid is smiling 90% of the time. I left out how often this kid gives and shows love. I left out a lot.
I am so proud of my son. He is only 5 and deals better with all these issues and more then most 30 year old would. God is using my son. He uses him every day to touch or effect someone. He empowers me. He gives me strength. He makes me realize that I should not complain. We as adults are such whiny babies sometimes. Walk a day in this boy shoes and you will be thankful.
I love my son's. They are a gift from above. I am so blessed to have them :)
Then a kid on the bus calls him snail because he walks slow and funny. I know all kids (even kids with out problems like Jack) get picked on. I think it is so frustrating for me because Jack has enough to deal with on a daily bases as it is. I told him to just tell the kids that they are not being nice. Tell them I am how I am because I have a disease that makes certain things harder for me. I guess I was more frustrated because I am having this conversation and he is in kindergarten. I guess I was expecting more of this stuff in like third or forth grade. Do parents today teach there children anything? Do we take responsibility anymore for our children's actions. Do we realize letting them watch, and hear certain things at the wrong age is wrong. Fine, do not shelter your children, but please age appropriate material. I can fail at this in ways at times myself. I am not pointing fingers but some parents do not care. They produce rude little off spring and just do not act as if they care. I guess as a christian all you can do is lead by example. I know as a christian I fail many times. Give it to God and pray . Pray for all the children. The rude, bossy, inconsiderate and love them all.
What are are schools today doing? What are they doing about all the children being bullied or harassed. You have to dress a certain way. You have to act a certain way. If you do not then you are an out cast. Then children do not want to go to school. Furthermore, AGAIN what are parents doing at home?
Jack has to be different every day of his life. It is a struggle just to get out of bed with out pain. To eat his breakfast with out being sick and vomiting. He has to start his day off with 13 medications. Trying to chew the pills down that are not liquid because he cant swallow pills. He has to try to dress himself. Depending on the day he may or may not be able. Then he has to rush at everyone else speed. He has to get woken up out of bed to go to school on time. He has to get up and start the rat race no matter if he has had 2 hours of sleep or 9. He has to watch his brother and best friend get on a bus to go to the same school, yet he cant ride on it. He gets driven to school. He then walks in a special entrance to try to preserve his energy for the day. He has to sit in a special chair instead of on the floor when the other kids are sitting on the floor. He has to be pulled out of the class through out the day to go to therapy. He has to ride around in a stroller type chair so he can make it physically through the day. He has to eat at a special table at lunch. He has to eat with kids with issues instead of his class because of his choking issues. He has to go to the nurse to get his asthma treatments. He has to carry around a water bottle so he doesn't over heat. He has to come home after the other kids are home. He has to arrive on the "little" bus. He then has to take a nap or have quite activity and not play because he is exhausted from his day. He has to quickly have another round of medication. Then before bed he will chew up some more nasty pills so he can hopefully get a good nights rest. That is what a typical day for Jack is like. I left out a lot. I left out the pain. I left out the tetany . I left out the being singled out. I left out the frustration. I left out the hurt. I left out the throwing up. I left out the many doctor appointments and tests. I left out his feelings. His feelings that get effected every day. Most importantly I left out that this kid barely ever complains. I left out that this kid is smiling 90% of the time. I left out how often this kid gives and shows love. I left out a lot.
I am so proud of my son. He is only 5 and deals better with all these issues and more then most 30 year old would. God is using my son. He uses him every day to touch or effect someone. He empowers me. He gives me strength. He makes me realize that I should not complain. We as adults are such whiny babies sometimes. Walk a day in this boy shoes and you will be thankful.
I love my son's. They are a gift from above. I am so blessed to have them :)
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