Well Jack started school last week. He is in first grade. The school year got off to a really Rockie start for us. He was suppose to be in a class with an aid. The first day off school I get there to find there was no aid in his class due to cut backs. How is a teacher suppose to take care of 17 other children plus Jack. What does she do when he needs assistant with toileting? What does she do when his stomach issues act up and he vomits? There is a laundry lists of what ifs. It was the first day and her response about a communication book back and forth was very poor. Needless to say I called the chairperson and talked with the principle. Jack has a CONFIRMED diagnosis. He has a disease with no cure or prognosis. He is very vulnerable. He may have a great day but that doesn't mean a great night. He may have a bad morning and that doesn't mean a bad rest of day. It is a daily waver of how he is doing. What of his many muscular areas and pain may act up. One teacher can not monitor this and be on point. It seemed at first because Jack has no learning disabilities that the school was all about education over Jacks safety. They did however by the second day change him to a class with a aid and two teachers. As a parent I am very happy. This team of teachers is appearing at this time to be great. God worked fast and answered this nervous mothers prayers. I am so glad I did not have to call Jacks lawyers or the umdf. I am glad that at this time they seem to be working well with me.
Jack was happy about the change. He however has been having major anxiety about school. I have finally got to the bottom of some of his issues. The School made his bus tag wrong and he new it. That is why he did not want to ride the bus. He has been having major anxiety and his stomach has been bothering him aside from the disease.
Please keep Jack in your prayers. He is just having major issues with school. He is having a hard time and is very frustrated. He also has a lot of appointments coming up. He has a MRI under sedation coming up. That is a big deal with Jack. We appreciate all the prayers we can get.
Monday, September 13, 2010
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