Jack is done with 1st Grade :)

Jack's last day of first grade is tomorrow. We had a very shaky start to the year. I will say his room teacher's ended up being excellent. They were very much on point with his overheating. He did miss a lot of school in the middle of the year due to illness or pain. I did in the beginning of the year and the end have to keep him home due to the heat. They put an AC unit in the classroom FINALLY, but it broke. Then after it was fixed it did not cool very well. That is something I will contact the CPSE chairperson about for next year.

It is so irritating dealing with schools and some doctors for Jack. I am sick of the answer being he has mitochondrial disease. It is like because there is no cure and no prognosis we just have to deal with things. Then because he looks normal people/school many times does not see how serious certain situations can potentially be.


We have an appointment with his specialist here in Syracuse tomorrow. We have an appointment in Cleveland in August. Please continue to keep Jack in your prayers. Pain management is his main issue at this time.