Update

Jack is still having a hard time in school. He has been real sick with his disease. It makes the mornings real hard for him. He wakes up a lot at night so having to get up at a certain time in the morning is hard. His stomach issues have still been real bad and that has not helped in the morning either. Once he gets to school he seems to be doing better then he was. He is saying that he likes school most days now. This is a big change because for the first couple of months he was saying he hated school. He still has his days that he hates it but it is getting better.

He is having the hardest time he has ever had dealing with his disease. For the first time in his little life he is seeing how his disease effects his every day life. He is getting irritated. He has had two break downs. He has just cried and yelled saying "I don't want this stupid disease...I don't want it...I don't want it". It has been so hard to keep it together in those times. I tell him that he is strong and that God is using him to be a light to other people. I try to show him the good that can come out of all his pain.

He still is very happy and joking almost all the time. It is only regarding school, pain, medication, and some rough tired mornings that he has had some issues. Jack deals with changing issues every day. He does well dealing with his disease for the most part. He is just getting older and really starting to see for himself the limits on his body. He is seeing how being ill and in pain effect his every day life. He is only six years old and he fights this every day with a smile on his face 90% of the time. It is a life full of pain, illness, and obstacles. He does it with such a great spirit.

Please keep Jack in your prayers. He is still struggling with many issues. He is getting a cold. The cold is kicking up his asthma. He has a couple doctor appointments this month. We are still trying to get some answers regarding his weight gain. We just try and deal with one of his issues at a time. Some days there are so many things that arise it seems overwhelming. Jack keeps moving and smiling so how can I do any different.