Going to Cleveland

Well I had to call in to my fairly new job for the first time today. Jack had a really bad night. This happens a lot but he was up so long that he was exhausted . I could not get him to get up. He was crying and pleading with me to let him sleep and he was sick to his stomach. Who knows if working out of the home will ever work for me. I will give it a little more time.

Jack has had a rough week in school this week. He got called fat in lunch. He did not want to participate in gym. When I talked to him about it he told me that he looks funny when doing the exercises. He said he cant do them like the other kids. He also said his legs hurt sometimes. He is in adaptive PE but I allowed them to migrate that in with his class so he could be with his peers. I don't know if that was the best idea. I just don't know sometimes if I make the best calls for Jack. It is so hard making the right decisions when your child has a disease that fluctuates from day to day.

We go this Friday to the Cleveland Clinic for Jack's check up. We are well over due. Pleas pray for us to have a safe trip. Please also pray that we get more answers and insights into Jack's disease. Thank you for all of you who pray for Jack. There is power in prayer.