Frustration

I am very frustrated today. I know I can not protect Jack from everything. I know kids will be kids. I still sometimes just want to scream. We live in a world were it seems each generation gets worse then the last. Jack is only in kindergarten. He says to me today "mommy can you help me get skinny"?.....long story short... a girl in his class is calling him fat. Jack is on the heavy side but is not fat. He is currently going through testing to see about this weight and height increase.
Then a kid on the bus calls him snail because he walks slow and funny. I know all kids (even kids with out problems like Jack) get picked on. I think it is so frustrating for me because Jack has enough to deal with on a daily bases as it is. I told him to just tell the kids that they are not being nice. Tell them I am how I am because I have a disease that makes certain things harder for me. I guess I was more frustrated because I am having this conversation and he is in kindergarten. I guess I was expecting more of this stuff in like third or forth grade. Do parents today teach there children anything? Do we take responsibility anymore for our children's actions. Do we realize letting them watch, and hear certain things at the wrong age is wrong. Fine, do not shelter your children, but please age appropriate material. I can fail at this in ways at times myself. I am not pointing fingers but some parents do not care. They produce rude little off spring and just do not act as if they care. I guess as a christian all you can do is lead by example. I know as a christian I fail many times. Give it to God and pray . Pray for all the children. The rude, bossy, inconsiderate and love them all.

What are are schools today doing? What are they doing about all the children being bullied or harassed. You have to dress a certain way. You have to act a certain way. If you do not then you are an out cast. Then children do not want to go to school. Furthermore, AGAIN what are parents doing at home?

Jack has to be different every day of his life. It is a struggle just to get out of bed with out pain. To eat his breakfast with out being sick and vomiting. He has to start his day off with 13 medications. Trying to chew the pills down that are not liquid because he cant swallow pills. He has to try to dress himself. Depending on the day he may or may not be able. Then he has to rush at everyone else speed. He has to get woken up out of bed to go to school on time. He has to get up and start the rat race no matter if he has had 2 hours of sleep or 9. He has to watch his brother and best friend get on a bus to go to the same school, yet he cant ride on it. He gets driven to school. He then walks in a special entrance to try to preserve his energy for the day. He has to sit in a special chair instead of on the floor when the other kids are sitting on the floor. He has to be pulled out of the class through out the day to go to therapy. He has to ride around in a stroller type chair so he can make it physically through the day. He has to eat at a special table at lunch. He has to eat with kids with issues instead of his class because of his choking issues. He has to go to the nurse to get his asthma treatments. He has to carry around a water bottle so he doesn't over heat. He has to come home after the other kids are home. He has to arrive on the "little" bus. He then has to take a nap or have quite activity and not play because he is exhausted from his day. He has to quickly have another round of medication. Then before bed he will chew up some more nasty pills so he can hopefully get a good nights rest. That is what a typical day for Jack is like. I left out a lot. I left out the pain. I left out the tetany . I left out the being singled out. I left out the frustration. I left out the hurt. I left out the throwing up. I left out the many doctor appointments and tests. I left out his feelings. His feelings that get effected every day. Most importantly I left out that this kid barely ever complains. I left out that this kid is smiling 90% of the time. I left out how often this kid gives and shows love. I left out a lot.

I am so proud of my son. He is only 5 and deals better with all these issues and more then most 30 year old would. God is using my son. He uses him every day to touch or effect someone. He empowers me. He gives me strength. He makes me realize that I should not complain. We as adults are such whiny babies sometimes. Walk a day in this boy shoes and you will be thankful.

I love my son's. They are a gift from above. I am so blessed to have them :)