Getting ready for Christmas

Jack had a few doctor appointments recently. They all went fairly well. We saw the specialist here yesterday. It gets a bit frustrating. There is no cure or prognosis for Jack. That means that we watch all the major areas with issues in his body and do what we can. They do not really fully get what is going on with his weight. They are sending him to a pain center to start to manage his pain. The doctors feel since this is something he will have to deal with throughout his life that it would be a good thing to start it now.
We go to Cleveland in April. We are still waiting to hear something about aqua therapy. He is currently on a waiting list and has been. That is very frustrating as well.

Jack has had a cold. His asthma has been acting up. Thank God, he seems to be getting better. His leg pain has been on the rise. He has been dealing with it pretty well.

He is focused on Christmas at this time. He has had a lot of questions. He has been asking a lot about Santa and Jesus. He has also been asking a lot of questions about death and heaven. I think this is a common age for these questions. His brother was around the same age when he asked these same things. He is very excited and counting down the days till Christmas. He is such a joy to be around.