UPDATE 5/16

Jack is doing OK lately. He had an appointment today with a pediatric GI doctor. Children with mitochondrial disease can have many stomach issues including reflux. This I knew, but he said that also. Anyway he thinks the choking and throwing up, stomach aches, ect.. could be from reflux. He told me to keep him on the previcid since he hasn't been on it long. Next Friday he has to go for a barium swallow. Then we will see the doctor again in the beginning of August. He said depending on what he sees on the swallow and if I see a improvement with the previcid we will go to the next step. The next step would be for him to put him under and do a scope and while he is in there do a biopsy. He thinks we will end up going that route, unless I see a huge change due to the medication.

I got the break down bill today from the Cleveland Clinic from his surgery. The bill was much more then I expected. Thank God my insurance paid for more then I thought they would. We are still stuck with a very large bill.
I got a answer back from the insurance regarding the 4000.00 dollar test that I appealed. They still are saying No to paying. There are a few more things the specialist wants done and genetic testing we would like done on us and especially Jacks brother. We are talking alot of money in tests that we would like done and some they see totally necessary and the next step for Jack. People would be amazed if I said how much the surgery and testing of the muscle bill came too. Way more then ever expected!

Please pray that God makes away financially for us to get these test done . Pray also that he gives us a way to pay these medical bills. We are also praying this week that Friday Jack's CPSE evaluation goes well. His only therapist actually showing up is his wonderful PT and his case worker. We are hoping we don't have to fight regarding services. It has been recommended by an outside agency that Jack get teacher services 5 times a week in a integrated setting. They are also recommending 2 times a week, PT, OT, and Speech services. Just pray the meeting goes well and we don't have any problems.

We just have to keep pressing forward and giving the glory to the Lord. It is very hard sometimes. We don't know how, but we know God will make away for everything!