Update

Jack is still having a hard time. He is not eating and he is drinking minimal amounts. I called the ENT and they wanted to see him. He said he is borderline dehydration and he said that he was on the fence about admitting him for hydration. He is not pleased with his eating, drinking, and urinating. He said he didn't want to have to put a IV unless totally necessary. We decided to watch him the next 24 hours and go from there. I feel confident that I know what to look for. I also think disease wise Jack is better off home. He lost a pond and a half. For Jack that is not good. The doctor wrote me a script for some anti nausea medication and told me to fill it if necessary. He doesn't want me to fill it unless necessary due to some of the side effects. It is hard because Jack is having all the GI issues to know exactly what is the cause of the not wanting to eat. We are suppose to travel this Friday to Rochester for a GI second opinion. We hope Jack is well enough for a trip.
Jack himself doesn't want to go back to the hospital . I have told him unless he starts drinking that is were he will have to go. He is doing a little better the last few hours with the drinking. We are hoping to see him perk up. Day 5 is a hard day after this surgery according to the ENT. Due to Jack disease any surgery or procedure is harder. It can throw him into a down turn. Hopefully this will not last too long and Jack will bounce back. He was having a lot of GI and leg pain before the surgery so this just adds to it. It is just hard to see him in pain. Seeing someone you love, especially someone so little in pain day in and day out in one way or another is tough. It is just amazing how well Jack does. He is such little trooper. He is brave, strong in spirit, and just plain amazing. God is good!