Update

Jack is doing OK at this time. He seems to be adjusting well to his new school. I am very happy with the team of teachers and therapists.

Jack's Stomach issues seem to be heightening this past week. He has been waking frequently at night. He is getting a cold and it is just starting to go into his chest. He has been complaining more frequently of leg pain at this time. He has had one tetany episode in the last two weeks and one period of not walking at all. It seems to me like he might be heading into a down turn. We hope he is not but that is what it looks like. The fall to winter is seeming to be a harder time for him.

Jack has several doctors appointments coming up in the next few months. He is also being fitted for new braces for added ankle support. He has hated to wear these in the past but we will see. Long term with out them he could have added issues. His ankles buckle in and causes knee issues and the list goes on. He has been wetting the bed a few times a week which is something he hasn't done in over a year. I am thinking this has to do with muscle weakness as things seem to be getting worse at this time for him.

We are moving this up coming weekend. Jack seems to be ok with it, but I know it will be hard. Jack has had a lot of changes since early May that are out of his control. Please keep Jack in your prayers. Jack has a lot of physical issues to deal with on a every day basis and this added stress is not good. Jack seems to be handling everything well. Jacks older brother helps him greatly. Please keep both of the boys in your prayers with this transition.

I also want to thank Michelle for putting together the love for Jack cook book. This is to help with Jack's medical expenses. This is greatly appreciated. Michelle is a wonderful person with a great heart.

I want to say thank you to Kimarie who is in the process of updating and changing Jacks website. It is people who love Jack and do things such as these that makes the days easier.

Jack and are whole family are so very lucky to have such wonderful friends and family. Thanks to everyone who is supporting us in this time of change.