Sorry it has been so long since I updated the blog. Life has just been getting away from me. Truthfully, I just have not wanted to think about Jack's problems. I am so use to dealing with it all that I try to act like everything is fine.

Jack is just getting over pink eye and a ear infection. His asthma has really kicked up . He has been waking at night with dry heaving and coughing. He seems to be a little better. School starts or should I say summer program starts for him today. I am not starting him till tomorrow. He did not sleep well last night and I just did not want to wake him. He has been extremely fatigued lately. I guess from getting over this cold or virus.

We go back to Cleveland at the end of August. Jack has a sleep study at the end of this month. We will see were that takes us. He saw his specialist here recently. He said that we will continue to monitor Jacks sugar. In the morning is the main time. He thinks his sugar being high is definitely disease related. It is high at times but not high enough that we will do anything at this time. We will just keep a eye on it. His weight has stayed the same. He praised me for that and said to keep doing what I am doing. Jack is tall and has grown. He will slim out if I can keep his diet and eating under control. It is hard at times. He is just so hungry. He doesn't get why he is or why I wont let him eat something.

He has been swimming in the heated pool. He goes off the steps and jumps in with floaties on. It is good for him because it is exercise that he can really do. The only down side is every time it really fatigues him. Every time he has had a hard time walking or not been able to walk later. He is still experiencing a lot of leg and recently more arm pain.

Please keep Jack in your prayers. His spirit is always high. I will say his pain is elevated along with his frustration. It is hard to deal with for him sometimes. He is just starting to get some of what is really going on with his body.