Jack had a great Christmas. He got many gifts. He loves Christmas. He was very happy and said Happy birthday Jesus many times.
He had pneumonia after thanksgiving but he is doing much better. We go to Cleveland in February for an appointment with a genetic counselor. We will see if we get anymore answers. The doctors have new names for things every day. The doctor said at Jack's last appointment that he has connective tissues disease. Connective tissue disease is separate from the confirmed mitochondrial disease. Connective tissues disease falls under many diseases.
Jack's pain and tetany have been a daily struggle. Jack seems to deal with the pain well for the most part. He still falls frequently and has tremors but it depends on the day on the frequency. Jack is such a inspiration to me. I love my son.
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