We are heading to Cleveland on Friday. It is Jacks 9 month check up. We go over the last nine months. We will discuss things that worked and what is currently going on. The appointments can be very stressful for all of us, especially Jack. We are however looking forward to the weekend. We took this appointment and have turned it into a mini trip. We plan on taking the boys a few places this weekend and not heading home right away. Mitochondrial disease is present every day in everything we do. We don't even notice it as much. We have to pack the wheel chair, all the medication, the sunblock, bug spray, pain ointment, cooling vest, and the list goes on ...but to us it has all become a way of life. It gets annoying and inter-ups the flow of fun at times but Jack deals pretty well. 
Please Keep Jack in your prayers. It has been a rough few months for him. We are praying this appointment goes well and that he stays well and doesn't have his disease interrupt his fun to much.