Appointments, Appointments

Jack has been doing the same lately. He has been really bad with stomach issues lately. Dry heaving every day or throwing up, complaining of stomach aches also. He wakes up at night with a stomach issues or leg pain. Both problems have been occurring during the day also, especially the stomach issues.

Jack will go on the 13th , to be put under and do the hip MRI. The specialist here is checking with the specialist in Cleveland regarding doing another test. He had said they would probably do it. Then I talked with him a couple days ago and he wants to leave it up to the specialist .He no longer thinks it is the best idea. He said they don't need the test for diagnostic purposes and it would require Jack to be under Anastasia for an extra 45 minutes to an hour. He said kids with mitochondrial disease can have trouble coming out of Anastasia. Jack never has but the longer they are under the better the chances of them having a problem. He will leave it up to the specialist In Cleveland. August 30th he is being put under and having a scope and biopsy done to the stomach. The medication should be helping and it is not. They need to see if the stomach muscles are working correctly and if anything else is going on. July 30th he is going to be fitted for some foot to ankle braces. The rehabilitation specialist is requiring that. They are also wanting his PT to do some taping of his knees in hopes to reduce muscles pain. September 17th he is going to the ENT to have that area followed up on. In the meantime he has a couple other follow up appointments including Cleveland to see the specialist.

Jack is pretty high spirited and full of it. He is quite the little joker. It is hard when he fatigues out or is in pain. He gets frustrated and that is hard to watch also. He hasn't had a good day in many months and that is frustrating for us as his parents. We just have to keep our trust in faith in the Lord.

We have so many wonderful friends and family here for support. With out you all we would have trouble keeping our chin up at times. One of these great friends have started a website for Jack. The web address is http://www.loveforjackmclean.com/ . You can also click on the link on the left of this page to be directed to the web site.