Getting ready to go to Cleveland

Well this is the week we go for Jacks check up with the specialist in Cleveland. His appointment is Friday and we are leaving on Thursday to go.

Jack is limping a lot again. His stomach is still really being an issues and he is having some weird things with his eyes going on.

I will talk to the Doctor in Cleveland regarding all the stuff that has been going on. I did speak with him on the phone and we took his advice and recommendations. Now we need to update him and go from there. As far as the nerve issues and periods of not walking at all the other doctors are a little Leary and wanting to leave things up to him. We will see, that is all we can do. I hope we get some answers.

It has been very frustrating for us as parents lately. A lot of things regarding his hips and knees that the orthopedic surgeon and rehabilitation doctor have mentioned. They are not sure things and not 100% sure they will help. We find it frustrating because if some of these other doctors would have listened to us and refereed us when Jack was a year old it would be easier to try these treatments. We had spoken about his left side and seeing an orthopedic surgeon around one and had mentioned it repeatedly to a few different doctors.

We have a lot of hard discussions and unknowing coming up. It is putting a huge financial strain as well as mental on us. Please keep us in your prayers and pray we make the best decisions for Jack. We get very frustrated with some of the physicians, especially the physicians who don't know much about this disease.

We are doing all we can and everything is effecting everything. We don't get into detail on this blog to much. We just like to keep people, that want to be informed some what up to date. We don't want to appear like we are whining or not trusting in God. All I can say is it is hard and keep us and especially Jack in your prayers.

With out going into a tone of details, if it is not one thing it is another lately. Jack and this down turn and everything else!

Just keep praying, that is all we can ask for! We know it could always be worse. It just seems like when it rains it pours lately. I am sure many of you can relate.

I will update the blog and let everyone that checks it know about how we made out when we get back!