UPDATE

Jack has had a OK couple weeks. He got over his cold, thank you Lord! He is STILL having the stomach issues and complaining of stomach aches. He is still dry heaving and vomiting, but it is less. He is not vomiting every day. He had a real bad night this past Sunday. He like normal woke up with leg pain. This time it was one of his pretty intense ones. He was crying and both legs were cramping. I could feel them when he asked me to rub them. They get so tight you can feel it. He had to go to the bathroom and went right down to the floor and could not walk at all. Monday morning he couldn't walk at all at first. After about 45 minutes he started to walk and do better. He had some tremors, but other then that he seemed much better. He did not have his regular full nap on Sunday. He also had added play. You just never know. In that same situation some days he would be OK. Never fine, but it would just cause unsteady walking and tremors. We got that and much more this time. He had some choking issues yesterday. He went trick or treating, but that was a bit hard. He had to go in the stroller a lot. He was very unsteady and not doing to great before we even left. I don't think anyone but me and his father noticed that, but we did. He couldn't carry his bag after about 10 houses. It was just to heavy for him. He said he was tired a few times also. He was good about it. He knows when he just cant go any more. He let me stroll him right up to doors. He would say trick or treat and I would take the bag and get the candy. It is one holiday we have a hard time with anyway. We might have to stop it all together if it gets too hard. The boys can always just pass out candy. I have some very cute pictures from last night. Jack was Buzz lightyear. I will download the pictures soon and put them on the main blog page. I think everyone will think he was so cute!

He saw the rehab doctor last week. We are trying some new braces. the ones they had made were not correct. They also want to try some knee taping. she said she knows everything is disease related, but she wants to try to help with the function part of things. If we can try to eliminate some of his issues it could help strengthen Jack in some ways. She knows he has to deal with these issues and they will not go away. She is trying to help with the pain. She believes some of these things might help lesson Jacks pain. I listen to all the 13 cooks in the pot. It is very difficult, they all see things different. I just will try anything to help Jack. Since there is no cure or prognosis anything we can do to help make the pain less is top on my list.

We got his appointments scheduled for the GI second opinion and the allergist. The GI appointment is December 14th and the allergist is not till January. Right now we are focusing on all the other appointments coming up. November is a crazy month for us with his appointments.

Please keep Jack in your prayers. Pray he doesn't get sick again. Pray that he is well on the 15th of this month for his MRI. Please pray for the doctors and give them wisdom in treating and dealing with Jack. He also has surgery at the end of the month. Please pray there are no complications. Help us as his parents to make the best decisions. It is so hard with so many doctors involved.

Jacks benefit is being done by family and friends. It is coming up in just 9 days. The fundraising committee is selling tickets, magnets, bracelets, and passing out flyer's this Saturday starting at 2:30 at the super walmart in Camillus. You can get your presale tickets for next Saturday there if you would like. I was told that you can always buy them at the door also.

We just want to thank everyone that is praying for us . We also want to thank everyone that is helping to put this benefit together. We have seen such kindness from so many people. Words can not even express how thankful we are for everyone's help, prayers, and support.