Update

Jack has a cold AGAIN! He is snotty and coughing. It has been like this for a couple days. The MRI is next Thursday. All we can do is hope he gets over it by then and doesn't get worse. I think I will feel like screaming if I have to reschedule it again. He is doing a bit better stomach wise. His respiratory doctor upped his stomach medication. He said when he saw him last that his throat still looked burned and with the fact he wasn't getting better he wanted to try it. He is complaining every other day instead of every day. If it is multiple days in a row he is complaining then it seems like we will get a day when he doesn't mention it after a bit. He is still dry heaving and throwing up but it is not everyday. His leg pain is still there but seems a bit better. Not every night or every day. He still wakes up every night with leg pain, stomach complaints,coughing, or something. He has had a few rough days this past few days with the tremors and instability, but he is getting or should I say now has a cold so maybe that is why.

I called the doctor that ordered the immune testing and she is out of town. The women I talked with said if there was anything bad she would have called. I am assuming the labs were fine, or at least not to concerning. The GI stuff still really bothers me, but we have to wait for the appointment. I am just trying to focus on the pretesting for surgery, the MRI, and the surgery for this month. I take it one month of appointments at a time.

I am just starting to realize that there is not much I can do at this point for Jack. He hasn't had a good day in a long time, but he is having better days the last few days. Everyday for him is always going to have signs of the disease and the issues. It is just hard when it is so full of so may of the issues and he is in pain. I am thanking God this week his stomach has let up a bit. We just have to take each day at a time. We have to try to watch Jack carefully and help to prevent as much as possible things that will trigger really bad episodes. Preventing is not the right word. I guess what I am trying to say is there are things that we know now, will make him have pain and be worse so we try to prevent those situations. Everyday has some kind of obstacles. I am just glad this week it is lighter. I am not happy about the cold and this could send us into a really bad week but only time will tell.

Please pray Jacks cold gets better by next Thursday and we can FINALLY have the MRI done. Please pray the pretesting on Friday goes well and he is OK.

We are looking forward to seeing everyone that can come to the benefit on Saturday! Mac and I want to thank everyone who is putting Jack benefit together. It is hard to be in a position to need a benefit. It is hard to realize this is all what it is. I will say that we have seen Gods love and hand in it all and are forever grateful to everyone who is trying to help.